Mothers' perceptions of their role in the treatments of their child's eating disorder

PARTICIPANT INFORMATION:

University of East London
Stratford Campus
Water Lane
London
E15 4LZ

University Research Ethics Committee

If you have any queries regarding the conduct of the research in which you are being asked to participate, please contact the Secretary of the University Research Ethics Committee:

Ms Debbie Dada,
Admissions and Ethics Officer
Graduate School,
University of East London,
Docklands Campus,
London E16 2RD
(Tel 020 8223 2976, Email: [email protected])

The Principal Investigator

Cathryn Hockridge
School of Psychology
Stratford Campus
Water Lane
London E15 4LZ
u063[email protected]

Consent to Participate in a Research Study

The purpose of this letter is to provide you with the information that you need to consider in deciding whether to participate in this study.

Project Title

Mothers' constructions of their role in their child's treatment for anorexia nervosa: A discourse analysis.

Project Description

Very few studies have researched parents' experiences or perceptions of the treatment process in the context of caring for a child with anorexia nervosa, although NHS NICE guidelines and various studies recommend that parents or caregivers be very involved in treatment.

This study aims to explore how mothers talk about their role in their child's treatment, and will contribute to knowledge of eating disorder treatment in the context of working with parents.

Recruitment Criteria

Mothers who are caring for, or have cared for a child with a diagnosis of Anorexia Nervosa.

Participants will be required to take part in an interview of approximately an hour in length to discuss their experiences of treatment and perceptions of their role in caring for their child in treatment and recovery. The interviews will take place an appropriate and convenient location and will be audio-recorded. There are also possibilities for telephone or skype interviews.

Confidentiality of the Data

Names and any identifying information of the participants will be changed immediately following interview and coded to ensure confidentiality throughout the write up procedure. The data will then be stored on a password protected computer to which only the principal researcher will have access. The interview recordings will be deleted following the transcription process and all related data will be deleted or shredded safely following submission of the project. Information provided by participants will be used only for the completion of this study.

Location

Interviews will take place at an appropriate and convenient location agreed by participant and researcher.

Disclaimer

You are not obliged to take part in this study, and are free to withdraw at any time during the interview process up until the point of submission of the research i.e. when the thesis is bound. Should you choose to withdraw from the study you may do so without disadvantage to yourself and without any obligation to give a reason.


“I had consistently been losing weight for more than 8 months and had become accustomed to eating very little. This triggered a return of my anorexia, after a 20-year period of recovery. SWEDA were able to offer me an appointment the very next day. When we met I was feeling very ill and frightened.I spoke to them about my fears, but then took the decision to go to my doctor on the way home. I was admitted to hospital within a few days.”

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